Imagine a young woman waking up one morning, getting her coffee, having her breakfast, and then taking her shower. It’s just an average day in the life of a twenty-five year old. Until she gets out of the shower and begins drying her hair. She notices a small bald spot at the top of her head, and her boyfriend confirms what she sees.
Instead of going to work she heads straight to the dermatologist. She is diagnosed with alopecia and told not to worry about it–it was probably a temporary situation, and isolated incident, and the hair would grow back. Five months later she was completely bald. Now imagine that young woman is you.
You have just begun living a nightmare that just won’t end. You try every treatment that is recommended, no matter how painful and/or expensive. They all fail. You do all the research, consult with the experts, do everything you’re told to do, and the only result you get are a few soft hairs beginning to sprout. However, within a few days they fall out.
The only consistent answer you get to all of your questions is, “We don’t know.” It’s a wait-and-see situation. However, there is a trial medication that you can try. But it costs about $800/month, insurance doesn’t cover it, and there is no guarantee that it will work. Or, if it does, that it will be permanent.
You feel completely normal except for your bald head. You aren’t sick, but you look really weird, even with your wig. Which, by the way, is hotter than hell and itches as well. Strangers come up to you and ask you what kind of cancer you have. Children stare and point, much to their parent’s embarrassment.
You tell the parents it’s okay–you’re used to it. You try and make jokes about it. You keep thinking that someday your hair might grow back. But the reality is, it’s a crap shoot. What would you do?
I honestly don’t know what I would do. But I don’t think I would handle it with the dignity, grace, and spirit that my niece does. She is that woman. And she is truly amazing.